Are there disease specific clinical trial resources?

Many patient advocacy groups and medical research institutions provide websites to help patients find clinical trials. Below are a few examples. You may want to do a search for patient advocacy groups in the disease area you are researching.

National Institutes of Health, National Cancer Institute

The National Cancer Institute, part of the federal government's National Institutes of Health, has a search tool for cancer clinical trials.

• Type in your cancer type or other keyword.
• Type in your age.
• Type in your zip code.

Filling out this information will give you results for trials that match your cancer type, age and location (within 100 miles). For broader results, simply leave on or all of the search fields empty.

NCI's website helps you find NCI-supported clinical trials that are taking place across the United States, Canada, and internationally. The list includes:
 

EmergingMed Clinical Trial Navigator Service

EmergingMed collects all the cancer-related clinical trials listed on ClinicalTrials.gov. You can search for specific cancer types, as well as the age and location of the patient. Then you can click on a clinical trial and click the orange "Pre-Screen Now" button to see if you are a good fit for the clinical trial. You can also request contact information to get in touch with the researchers.
 

Pancreatic Cancer Action Network Clinical Trial Finder

This tool helps people find clinical trials for pancreatic cancer treatments. To use it, enter the following information to the best of your knowledge:

• Type of pancreatic cancer.
• Stage of pancreatic cancer.
• Overall treatment history.

Memorial Sloan Kettering Cancer Center

The MSK Cancer Center in New York, N.Y. offers information on their current cancer trials. You can search by cancer type or keyword. You can also search specifically for childhood cancer trials. At any given time, MSK Cancer Center has hundreds of active clinical trials.

If you find a clinical trial through any of the above-mentioned organizations, and want to volunteer, have a conversation with your doctor or other healthcare professional. They will help you confirm that you can, or should, participate. They will also tell you the risks and potential benefits of participating.

National Institutes of Health’s National Institute on Aging

The National Institutes of Health's National Institute on Aging has a search tool to find clinical trials for Alzheimer's, other dementias, mild cognitive impairment, and caregiving. Enter your location to find clinical trials near you.

If you find a clinical trial and want to volunteer, have a conversation with your doctor or other healthcare professional. They will help you confirm that you can, or should, participate. They will also tell you the risks and potential benefits of participating.
 

American Kidney Fund

The American Kidney Fund uses a search tool called Antidote Match to help people find clinical trials for kidney diseases. Go to this webpage, scroll down to "Match to clinical trials in 60 seconds" and click "Start." Then fill out the antidote match survey. 

If you find a clinical trial and want to volunteer, have a conversation with your doctor or other healthcare professional. They will help you confirm that you can, or should, participate. They will also tell you the risks and potential benefits of participating.

National Organization for Rare Disorders (NORD)

NORD is a patient advocacy group provides information about opportunities to participate in clinical trials for rare diseases.  Go to this webpage to find information about active clinical trial and other resources. 
 

Orphanet

Orphanet is a French organization dedicated to gathering information about rare diseases. It has a search tool for rare disease clinical trials taking place all over the world. Enter a rare disease and click "Recruiting trials" to find trials you may be able to volunteer for.

You can also search by gene name or symbol, and search by country.

If you find a clinical trial and want to volunteer, have a conversation with your doctor or other healthcare professional. They will help you confirm that you can, or should, participate. They will also tell you the risks and potential benefits of participating.
 

Biopharmaceutical company websites

Many biopharmaceutical companies provide lists of the clinical trials that they sponsor on their individual websites. Sometimes, though, the companies may refer you to the websites of other organization that help them find patients for trials.